Contents

Tessa Jowell Brain Cancer Mission Website Terms and Conditions.

Tessa Jowell Academy Registration Terms and Conditions.

Tessa Jowell Brain Cancer Mission Website Privacy Policy.

Tessa Jowell Brain Cancer Mission Website Terms and Conditions

– Updated April 2025

Background

Welcome to our Website. Please read the below carefully, as it is legally binding. Please note that your use of this Website means you accept these Terms and Conditions from the date that you first use this Website.

1. Definitions

1.1 ‘Tessa Jowell Brain Cancer Mission C.I.C’ and ‘TJBCM’ means Tessa Jowell Brain Cancer Mission, an entity registered with the Companies House, Department for Business and Trade, United Kingdom (company number #13869379) at Unit 3, 42 Orchard Road, London, N6 5TR, United Kingdom.

1.2 ‘Website’ means the Tessa Jowell Brain Cancer Mission (TJBCM) website https://www.tessajowellbraincancermission.org/ and all its component pages, including the Tessa Jowell Academy, or any other website under TJBCM ownership or control from which a link has been created to these.

1.3 ‘You’, ‘your’ and ‘yours’ means the person(s) accessing the Website.

1.4 ‘We’, ‘us’ and ‘our’ means TJBCM.

1.5 ‘Material’ means any information, data, text, functionality, software, website design, audio, video, photographs, graphics, links, programming code or other material published, contained or available on the Website.

1.6 ‘Features’ means all Website functionality and the associated services and communication which ensue from the use of the functionality. This includes, but is not limited to the Members Directory, Resources, Connect, Events, Clinical Trials, Impact and News features.

1.7 ‘Terms and Conditions’ means the terms and conditions set out below, including where applicable, the ‘Tessa Jowell Academy Registration Terms and Conditions’ (defined below).

2. Changes to the Terms and Conditions

2.1 We reserve the right to change these Terms and Conditions at any time. Please check back regularly because the amended Terms and Conditions will apply to your continued use of the Website. Certain provisions may be extended or superseded by expressly designated legal notices or terms located on particular pages of the Website.

3. Contacting us about our Terms and Conditions

3.1 If you are uncertain about anything in these Terms and Conditions please contact us:

• By email: academy@tessajowellbcm.org
• By written mail: Tessa Jowell Brain Cancer Mission, Unit 3, 42 Orchard Road, London, N6 5TR, United Kingdom

4. Users

4.1 The Website is intended for people accessing it from within the United Kingdom. We cannot guarantee the Website or the information it contains complies with laws in other countries or is appropriate for use in other countries.

4.2 If you access the Website from any other region of the world with laws or other requirements governing personal data collection, use, or disclosure that differ from applicable laws in the United Kingdom, then through your continued use of the Website, you are transferring your data to the United Kingdom, and you agree to have your data transferred to and processed in the United Kingdom.

5. Tessa Jowell Academy Registration

5.1 Certain areas of the Website (such as the Tessa Jowell Academy) are only available to you if you register. Additional Tessa Jowell Academy Registration Terms and Conditions (stipulated in the Tessa Jowell Academy Registration Terms and Conditions below) will apply to you if you choose to register.

6. Material on the Website

6.1 Material on the Website is provided ‘as is’ and for information purposes only. Whilst every care is taken in compiling the information on the Website, we do not make any warranties or representations as to its accuracy, completeness, currency, or reliability. We may make changes to, modifications to, or remove the Material on the Website at any time without notice.

6.2 Use of this Website and its Material is at the sole risk of the persons accessing the Website, and it is the responsibility of the person accessing the Website to ensure that any decisions or actions are consistent with current professional standards, regulations, and their organisation’s protocols. You are advised to verify the Material on this Website with other sources and exercise their professional judgment before relying on the content for decision-making, diagnosis, treatment, or advice. The Material provided on this Website is not intended to replace or substitute professional training, diagnosis, or treatment, nor should it supersede or override any organisational protocols, guidelines, or procedures in place within your institution.

6.3 Certain information on the Website may contain typographical errors, inaccuracies, omissions, or other errors or be out of date, and we make no commitment to update such information. We and any third parties referred to on the Website assume no responsibility for how you use the information provided through the Website.

6.4 This Website may contain articles, photographs, text, graphics, pictures, designs, music, sound, video, information, applications, software, and other content or items belonging to or originating from third parties. Third-party contents are not investigated, monitored, or checked for accuracy, reliability, appropriateness, or completeness by us, and we are not responsible for any third-party content posted on, available through, or installed from this Website. Inclusion of any third-party content does not imply approval or endorsement thereof by us.

7. Medical information

7.1 Any medical information referred to in or through this Website is given for information purposes only and it is not intended to constitute professional advice for medical diagnosis or treatment, to replace consultation with a qualified medical practitioner, or to advocate or recommend the purchase of any product or to endorse or guarantee the credentials or appropriateness of any health care provider. You are strongly advised to consult with an appropriate professional for specific advice tailored to your situation.

8. Links

8.1 Where we provide hypertext links to other websites, we do so for information purposes only. We are not responsible for the content of any other websites or pages linking to or from our Website. We have not verified the content of any such websites and links to other websites do not imply any endorsement of the material and services on those websites.

8.2 If you choose to follow links to other websites you do so at your own risk. It is your responsibility to take all protective measures to guard against viruses or other destructive elements. You should review the applicable terms and policies, including privacy and data gathering practices, of any website to which you navigate from this Website or relating to any applications you use or install from this Website.

8.3 Any purchases you make through other websites will be through other websites and from other companies, and we take no responsibility whatsoever in relation to such purchases which are exclusively between you and the applicable third party.

8.4 If you would like to establish a link to our website, please ask our permission before you do so. You can request permission from us by contacting us using the details in 3.1.

9. Use of the Website and copyright

9.1 Unless otherwise indicated, the TJBCM is the owner or the licensee of all the Material and Features published on the Website.

9.2 You may access, view and print copies of Material contained in the Website as long as you comply with these Terms and Conditions and:

• you use the Material and Features for information purposes and for your non-commercial, personal use only.
• all copyright, trademark and other proprietary notices are kept on the Material and Features.
• you do not use any illustrations, photographs, video or audio sequences or any graphics separately from any accompanying text.
• you do not modify, reproduce, display, distribute the Material and Features or perform the Material and Features for any public use without prior written consent from TJBCM.

9.3 Any trademarks, service marks and logos displayed on the Website are registered and unregistered trademarks of TJBCM and its partner organisations or its licensors and may not be used without TJBCM’s written permission.

10. Website access

10.1 Whilst we try to ensure that the Website is normally available 24 hours a day, we shall not be liable if for any reason the Website is unavailable at any time or for any period. Access to the Website may be suspended temporarily and without notice in the case of system failure, maintenance or repair or for reasons beyond our control.

10.2 We reserve the right to change, revise, update, suspend, discontinue, or otherwise modify the Website at any time or for any reason without notice to you.

10.3 Nothing in these Terms and Conditions will be construed to obligate us to maintain and support the Website or to supply any corrections, updates, or releases in connection therewith.

10.4 You are prohibited from accessing the Website through automated or non-human means, whether through a bot, script, or otherwise.

10.5 By accessing this Website, you agree that you will not use the Website for any illegal or unauthorised purposes.

11. Liability

11.1 This Website is provided on an as is and as available basis. Neither we, nor any other party involved in creating, producing, maintaining or delivering the Website, will be liable for any amount or kind of loss or damage that may result to you or a third party including without limitation any loss of income, profits, goodwill, data, contracts, use of money, or loss or damages arising from or connected in any way to business interruption, whether in tort, contract or otherwise (including without limitation negligence) in connection with: your use, inability to use or the results of use of the Website, any websites linked to the Website or the material on such websites; third-party content on the Website; any amount or kind of loss or damage including without limitation any loss or damage due to viruses that may infect your computer equipment, software, data, or other property on account of your access to, use of, or browsing the Website or your downloading of any Material from the Website or any websites linked to the Website.

11.2 In so far as we are able, we exclude all liability for all direct, indirect, punitive or consequential loss or damage which arises out of or in connection with the use of the Website.

11.3 Nothing in these Terms and Conditions shall exclude or limit our liability for death or personal injury caused by negligence (as such term is defined by the Unfair Contract Terms Act 1977), fraud, or misrepresentation as to a fundamental matter.

11.4 If your use of the Website results in the need for servicing, repair or correction of your equipment, software or data, you assume all costs of this.

12. Privacy and data protection

12.1 By using this website, we will collect your IP address. We do this for the purpose of detecting, preventing and addressing any potential technical issues that may occur.

12.2 We are committed to protecting your privacy online. For more information on please see our Privacy Policy below.

13. No partnership or agency

13.1 Nothing in these Tessa Jowell Brain Cancer Mission Website Terms and Conditions is intended to, or shall be deemed to, establish any partnership, relationship, or joint venture between You and the TJBCM.

14. Governing law

14.1 These Terms and Conditions shall be governed by the laws of England and any dispute arising from these Terms and Conditions or your use of the Website shall be subject to the exclusive jurisdiction of the English courts.

Tessa Jowell Academy Registration Terms and Conditions

– Updated April 2025

1. Tessa Jowell Academy Registration definitions

1.1 A ‘Member’ is a person who, subject to the Tessa Jowell Academy Registration Terms and Conditions, has registered to use the Tessa Jowell Academy on our Website. Members may include professionals from NHS Neuro-Oncology Centres, UK Universities, TJBCM Partner Organisations, other non-profit organisations, commercial companies or industry, and other international or private neuro-oncology organisations.

1.2 The ‘Tessa Jowell Academy’ is an area of the Website that requires registration before a person can gain access. The Tessa Jowell Academy includes https://www.tessajowellbraincancermission.org/academy/ and all its component pages or any other website under TJBCM ownership or control from which a link has been created to these.

1.3 ‘Your Content’ is any and of all your content, whether written or oral, submitted or uploaded by Members, including names, images, photographs, video clips, biographical information, text, logos, marks and any other information and materials.

1.4. ‘Your Contributions’ are your contributions or participations in chat functions within meeting platforms (including but not limited to Microsoft Teams and Zoom), blogs, forms, message boards, online forums, and other functionality, that may provide you with the opportunity to create, submit, post, display, transmit, perform, publish, distribute, or broadcast content and materials to us or on the Tessa Jowell Academy, including but not limited to text, writings, video, audio, photographs, graphics, comments, suggestions, or personal information or other material.

1.4 ‘You’, ‘your’ and ‘yours’ means the person(s) accessing the Website and the Tessa Jowell Academy.

1.5 ‘We’, ‘us’ and ‘our’ means Tessa Jowell Brain Cancer Mission (TJBCM).

1.6 ‘Material’ means any information, data, text, graphics, links, videos, audio files, programming code or other material published, contained or available on the Website.

1.7 ‘Tessa Jowell Academy Registration Terms and Conditions’ means the terms and conditions set out below.

2. Registration process and eligibility

2.1 Before you are able to access the Tessa Jowell Academy you must read through these Tessa Jowell Academy Registration Terms and Conditions.

2.2 To register, you need to provide a verifiable NHS hospital or UK university email address and complete the required fields on the registration form and read and accept the Tessa Jowell Brain Cancer Mission Website Terms and Conditions, these Tessa Jowell Academy Registration Terms and Conditions, and our Privacy Policy. Once you have done this, we will send you a confirmation email with your registration information.

2.3 To register with a non-NHS hospital (including but not limited to private hospitals or international hospitals) or non-UK university email address, you will need to email us at academy@tessajowellbcm.org to arrange a paid membership. The paid membership involves a nominal fee to support platform running costs.

2.4 By using the Tessa Jowell Academy you warrant that: all registration information you submit is truthful and accurate; you will maintain the accuracy of this information and promptly update such registration information as necessary; your use does not violate any applicable law or regulation; you will not share your Tessa Jowell Academy registration and login details with anyone else; and you are 18 years of age or older.

2.5 Tessa Jowell Academy registration is solely for users aged 18 and over. Any registration by, use or access to the Tessa Jowell Academy by anyone under 18 years of age shall be unauthorised, unlicensed and in violation of these Tessa Jowell Academy Registration Terms and Conditions.

2.6 We reserve the right to terminate your membership without warning or permission if:

• we believe that you are under 18 years of age.
• you register with a non-NHS hospital or non-UK university email address, without prior permission via academy@tessajowellbcm.org.
• in your registration you provide any information that is untrue, inaccurate, not current, or incomplete.
• you share your Tessa Jowell Academy registration details and login with others.

3. Passwords

3.1 By registering, you promise to keep your password secret and not to disclose or share it with anyone. If you believe that someone else may have access to or know your password, you must contact us immediately to change it.

4. Submission of content and contributions

4.1 As a Member, you may post or upload Your Content and Your Contributions to the Tessa Jowell Academy as long as you comply with the Tessa Jowell Brain Cancer Mission Terms and Conditions and the Tessa Jowell Academy Registration Terms and Conditions. You grant us a perpetual, royalty-free, non-exclusive licence to use Your Content and Your Contributions on the Tessa Jowell Academy, and subject to your permission for any other uses as we may require in any and all media. This includes, without limitation, the right to sub-license to third parties via any and all media (whether existing now or invented in the future). You grant us all necessary rights, licences, consents and clearances to allow us to use Your Content and Your Contributions in accordance with the Tessa Jowell Brain Cancer Mission Terms and Conditions and Tessa Jowell Academy Registration Terms and Conditions and agree not to assert any moral or similar rights you may have in any of Your Content and Your Contributions.

4.2 Your Content and Your Contributions will be viewable by other Members of the Tessa Jowell Academy. As such, any of Your Content and Your Contributions you transmit may be treated as non-confidential and non-proprietary.

4.3 You guarantee that Your Content and Your Contributions:

• does not infringe any copyright, patent, trade secret, trademarks, rights of privacy/confidentiality, publicity or other intellectual property or other rights of any other person or entity.
• does not contain any information about any person(s) under the age of 16 unless you are either their parent or legal guardian, or have signed permission from their parent or legal guardian.
• does not contain malicious code, viruses or other harmful programmes or material.
• does not violate any applicable law, statute, ordinance, rule or regulation.
• meets our Content and Contributions Standards (as described in Section 5) and complies with any specific rules that may apply to any particular area of the Members’ Areas.

4.4 You agree that before posting or uploading Your Content and Your Contributions you are responsible for obtaining all releases, consents and/or licenses necessary for uploading Your Content and Your Contributions on the Tessa Jowell Academy and for any subsequent use of that content and contributions by us in accordance with these Tessa Jowell Academy Registration Terms and Conditions.

4.5 You promise that you are the person depicted in any images or recordings submitted as part of Your Content and Your Contributions and if you upload any images or recordings of any third party, you have obtained the prior written consent of that party to submit such content and contributions to Tessa Jowell Academy.

4.6 You agree that if you share your contact details alongside or as part of any Content and Contributions that We or other Members may contact you using these contact details.

4.7 The TJBCM are not liable for any statements or representations in Your Content or Your Contributions (including any personal comments) provided by you in any area on the Tessa Jowell Academy.

4.8 You agree to indemnify us and any related third parties in full from and against all third party claims, liabilities, losses and expenses (including reasonable legal fees) incurred or suffered by such persons arising out of or related to Your Content and Your Contributions and/or any breach by you of any term in these Tessa Jowell Academy Registration Terms and Conditions.

4.9 If you are affiliated with companies or industry in any way (paid or non-paid), you must declare this prior to submission of Your Content and Your Contributions on the Tessa Jowell Academy.

5. Content and Contribution standards

5.1 You agree whenever you submit Your Content and Your Contributions to the Tessa Jowell Academy or contact other Members you must comply with our Content and Contribution Standards. If you do not comply, we reserve the right to suspend or ban you from using the Tessa Jowell Academy and the Member Areas without notice.

5.2 You agree Your Content and Your Contributions must be accurate where it states facts and be genuinely held where it states opinions. You agree Your Content and Your Contributions must not:

• be false, inaccurate, or misleading.
• contain unsolicited or unauthorised advertising, promotional materials, pyramid schemes, chain letters, spam, mass mailings, or other forms of solicitation.
• contain any material which constitutes or encourages conduct that could be considered a criminal offence, give rise to civil liability, or otherwise be contrary to the law.
• contain any material which is defamatory.
• contain any material which is obscene or offensive.
• infringe any copyright, database rights, trade mark or other intellectual property right or other right of any other person.
• be likely to deceive any person.
• be made in breach of any legal duty owed to a third party such as a contractual duty or obligation of confidentiality.
• abuse, harass, ridicule, threaten, promote violence, upset, intimidate, embarrass, mock, disparage, alarm or annoy any other person.
• include any offensive comments that are connected to race, national origin, gender, sexual preference, or physical handicap.
• be obscene, lewd, lascivious, filthy, violent, harassing, libelous, slanderous, or otherwise objectionable (as determined by Us).
• be likely to disrupt our service in any way.
• give the impression it emanates from us where this is not the case.
• advocate, promote or assist any unlawful act, for example copyright, trade mark infringement, or computer misuse.
• infringe any copyright, trade marks, rights of privacy/confidentiality, publicity or other intellectual property or other rights of any other person or entity.
• contain any information about any person(s) under the age of 16 unless you are either their parent or legal guardian, or have signed permission from their parent or legal guardian.

• violate any applicable law concerning child pornography, or otherwise intended to protect the health or well-being of minors.

• contain malicious code, viruses or other harmful programmes or material.
• violate any applicable law, statute, ordinance, rule or regulation.

5.3 We reserve the right to determine if Your Content and Your Contributions is suitable for the Tessa Jowell Academy.

6. Use of your content

6.1 You agree to comply with any additional rules that may apply to a particular Members’ Area.

6.2 We reserve the right to edit, change, reject, block, suspend, remove, or move to another area of the Tessa Jowell Academy Your Content and Your Contributions at any time at our sole discretion. We in no way guarantee that Your Content and Your Contributions or any part of it will be displayed on the Tessa Jowell Academy. Any content is published at our discretion.

6.3 We are under no obligation to monitor Your Content and Your Contributions.

7. Prohibited activities

7.1 You may not access or use the Tessa Jowell Academy for any purpose other than that for which we make the Tessa Jowell Academy available. The Tessa Jowell Academy may not be used in connection with any commercial endeavours except those that are specifically endorsed or approved by us. As a Member of the Tessa Jowell Academy, you agree not to:

• collect or share other Members’ content, contributions, comments, contact details or personal details with individuals on or outside of the Tessa Jowell Academy unless approved by TJBCM and/or the individual Member.
• share or forward emails or other messaging content distributed through the Tessa Jowell Academy with individuals on or outside of the Tessa Jowell Academy unless approved by TJBCM.
• systematically retrieve data or other content from the Tessa Jowell Academy to create or compile, directly or indirectly, a collection, compilation, database, or directory without written permission from us.
• trick, defraud, or mislead us and other Members, especially in any attempt to learn sensitive account information such as user passwords.
• circumvent, disable, or otherwise interfere with security-related features of the Tessa Jowell Academy, including features that prevent or restrict the use or copying of any content or enforce limitations on the use of the Tessa Jowell Academy and/or the content contained therein.
• disparage, tarnish, or otherwise harm, in our opinion, us and/or the Tessa Jowell Academy.
• use any information obtained from the Tessa Jowell Academy in order to harass, abuse, or harm another person.
• make improper use of our support services or submit false reports of abuse or misconduct.
• use the Tessa Jowell Academy in a manner inconsistent with any applicable laws or regulations.
• engage in unauthorised framing of or linking to the Tessa Jowell Academy.
• upload or transmit (or attempt to upload or to transmit) viruses, Trojan horses, or other material, including excessive use of capital letters and spamming (continuous posting of repetitive text), that interferes with any party’s uninterrupted use and enjoyment of the Tessa Jowell Academy or modifies, impairs, disrupts, alters, or interferes with the use, features, functions, operation, or maintenance of the Tessa Jowell Academy.
• engage in any automated use of the system, such as using scripts to send comments or messages, or using any data mining, robots, or similar data gathering and extraction tools.
• delete the copyright or other proprietary rights notice from any content.
• attempt to impersonate another Member or person or use the username of another Member.
• upload or transmit (or attempt to upload or to transmit) any material that acts as a passive or active information collection or transmission mechanism, including without limitation, clear graphics interchange formats (“gifs”), 1×1 pixels, web bugs, cookies, or other similar devices (sometimes referred to as “spyware” or “passive collection mechanisms” or “pcms”).
• interfere with, disrupt, or create an undue burden on the Tessa Jowell Academy or the networks or services connected to the Tessa Jowell Academy.
• harass, annoy, intimidate, or threaten any of our employees or agents engaged in providing any portion of the Tessa Jowell Academy to you.
• attempt to bypass any measures of the Tessa Jowell Academy designed to prevent or restrict access to the Tessa Jowell Academy, or any portion of the Tessa Jowell Academy.
• copy or adapt the Tessa Jowell Academy software, including but not limited to Flash, PHP, HTML, JavaScript, or other code.
• except as permitted by applicable law, decipher, decompile, disassemble, or reverse engineer any of the software comprising or in any way making up a part of the Tessa Jowell Academy.
• except as may be the result of standard search engine or Internet browser usage, use, launch, develop, or distribute any automated system, including without limitation, any spider, robot, cheat utility, scraper, or offline reader that accesses the Tessa Jowell Academy, or using or launching any unauthorized script or other software.
• use a buying agent or purchasing agent to make purchases on the Tessa Jowell Academy.
• make any unauthorised use of the Tessa Jowell Academy, including collecting names and/or email addresses of Members by electronic or other means for the purpose of sending unsolicited email, or creating user accounts by automated means or under false pretences.
• use the Tessa Jowell Academy as part of any effort to compete with us or otherwise use the Tessa Jowell Academy for any revenue-generating endeavour or commercial enterprise.
• use the Tessa Jowell Academy to advertise or offer to sell goods and services.
• sell or otherwise transfer your membership.

8. Your personal information

8.1 Posting personal information on the Tessa Jowell Academy means your information is publicly accessible. For more information on how we collect and use personal information please see our Privacy Policy.

8.2 When you register, you agree that your registration profile (including your title, first name, last name, institution, job title, profile picture and primary patient population i.e. paediatrics or adults) will be publicly listed in the Members Directory.

8.3 When you sign up to a Network or Working Group on the Tessa Jowell Academy, communication may take place via group email. Your email address will be visible to other Members in the Network or Working Group as part of these emails.

9. Commercial and industry access to Tessa Jowell Academy

9.1 Commercial and industry partners (‘Commercial and Industry Users’) may access the TJBCM Website and Tessa Jowell Academy for educational purposes.

9.2 Commercial and Industry users will be restricted from accessing certain sections of the Tessa Jowell Academy, including the Clinical Trials Finder and the Member section (including but not limited to Centres and Members pages).

9.3 Commercial and industry users should only join live events, talks, webinars or seminars if they have gained permission from the TJBCM.

9.4 While accessing the TJBCM Website and Tessa Jowell Academy, Commercial and Industry Users must agree to adhere to all relevant local and international laws, regulations, and codes of conducts, including but not limited to:

• Human Medicines Regulations 2012/1916.
• Medicines and Healthcare products Regulatory Agency (MHRA) Blue Guide – Advertising and Promotion of Medicines in the UK
• Medicines and Medical Devices Act 2021
• Medical Devices Regulations 2002
• The Consumer Protection from Unfair Trading Regulations 2008/1277
• The Business Protection from Misleading Marketing Regulations 2008/1276
• The Association of the British Pharmaceutical Industry (ABPI) Code of Practice
• The Proprietary Association of Great Britain (PAGB) Professional and Consumer Codes
• The Association of British Healthcare Industries (ABHI) Code of Practice, including the ABHI Guidelines on Advertisements & Promotions and the ABHI Guidelines on Interactions with Healthcare Professionals
• The PAGB Medical Devices Consumer Code
• UK Code of Non-broadcast Advertising and Direct & Promotional Marketing (“CAP Code”) and the UK Code of Broadcast Advertising

9.5 TJBCM accepts no responsibility for enforcing the laws, regulations and codes and conducts, including but not limited to those outlined in 9.4. It is Commercial and Industry Users’ responsibility to let TJBCM know if there has been a potential breach of relevant laws, regulations, codes and conducts.

9.6 Commercial and Industry Users are prohibited from contacting other Members on the Tessa Jowell Academy in any way or form.

9.7 All educational content on the Tessa Jowell Academy platform is developed independently and does not reflect the views or interests of any company. Any sponsored content will be clearly labelled as such.

10. Written communications

10.1 Our principle means of communication with you will be mainly electronic. We will contact you by email or provide you with information by posting notice on the Tessa Jowell Academy. You agree to electronic communications and acknowledge that all contract, notice and other communication that we provide electronically comply with any requirement that they must be in writing. This does not affect your statutory rights.

11. Term and termination

11.1 These Tessa Jowell Academy Registration Terms and Conditions will apply from the time of your registration to the Tessa Jowell Academy and will remain in full force and effect until you deregister from the Tessa Jowell Academy.

11.2 We reserve the right to, in our sole discretion and without notice, deny access to and use of the Tessa Jowell Academy. If we terminate or suspend your registration for any reason, you are prohibited from registering and creating a new account under your name, a fake or borrowed name, or the name of any third party, even if you may be acting on behalf of the third party. In addition to terminating or suspending your registration, we reserve the right to take appropriate legal action, including without limitation pursuing civil, criminal, and injunctive redress.

11.3 If you would like to deregister from the Tessa Jowell Academy and revoke membership, you may choose to do this at any time by contacting us using the details in Section 12. The TJBCM will remove your member profile but retains the right to keep Your Contributions and Your Content on the platform and other information exchanged through form submission or email exchange. By deregistering, you will be removed from all previously signed-up to email lists and will no longer receive any information associated to the Tessa Jowell Academy. Any email groups you have signed up to will need to be unsubscribed individually by emailing academy@tessajowellbcm.org.

11.4 Subject to the express provisions of this section 12, any provision of these Tessa Jowell Academy Registration Terms and Conditions that expressly or by implication are intended to come into or continue in force on or after termination or expiry of these Tessa Jowell Academy Registration Terms and Conditions shall remain in full force and effect.

12. Contacting us

12.1 If you would like to contact us about anything in these Tessa Jowell Academy Registration Terms and Conditions please contact us:

• By email: academy@tessajowellbcm.org
• By written mail: Tessa Jowell Brain Cancer Mission, Unit 3, 42 Orchard Road, London, N6 5TR, United Kingdom

Tessa Jowell Brain Cancer Mission Website Privacy Policy

– Updated April 2025

Background

We respect your right to privacy. This Privacy Policy sets out details of the information that we may collect from you and how we may use that information. Please read this Privacy Policy carefully.

1. About Us

1.1 In this Privacy Policy, references to “we” or “us” are to Tessa Jowell Brain Cancer Mission (TJBCM), whose hosted registered office is at Unit 3, 41 Orchard Road, London, N65TR, United Kingdom, who will be the controller of any personal data processed as described in this Privacy Policy.

2. Context

2.1 This Privacy Policy applies only to how TJBCM use your personal data in relations to General Data Protection Regulation 2018. Other organisations who provide services include, but are not limited to; WordPress, Humantrix, Google Forms, Google Analytics, Mailchimp, Doodle, Qualtrics may also gather information and you should consult those other parties’ privacy policies as appropriate and applicable.

3. Collection of Information

3.1 When you visit the TJBCM website, we collect, store and use certain of your personal information in line with this policy.

3.2 To register on the Tessa Jowell Academy we ask for personal data, including but not limited to your name, email address, job title, and institution.

3.3 Your personal information is also collected when you submit an online form on the TJBCM Website. This information is stored on our website via WordPress and emailed to the relevant TJBCM employees to help us to tailor the service to suit you and evaluate the impact of our educational offerings.

3.4 All personal information is securely stored on either OneDrive or Google Drive.

4. Use of Your Information

4.1 By using the TJBCM website, registering on the Tessa Jowell Academy, responding to or participating in any survey or questionnaire sent to you by us, you agree that your personal information may be collected, stored, used and shared by us and our partners (including industry and commercial), course and content providers, or third parties we work with, for any of the following purposes:

• to provide, maintain, protect and improve the quality and user experience of the TJBCM Website and Tessa Jowell Academy network;
• to fulfil any contractual agreements between you and us and any third party who has commissioned the education on your behalf;
• to send you details of webinars, events and other resources which we think may interest you, unless you opt out as described in Section 10 below.
• to manage the personal account that you hold with us;
• to comply with legal and regulatory requirements;
• for the purpose of enhancing educational content, conducting research, or improving products and services;
• to contact you occasionally in order to invite you to share your opinions and experiences about the TJBCM Website or the Tessa Jowell Academy.

4.2 We may use your email address to send you notices and updates about the TJBCM Website or the Tessa Jowell Academy.

4.3 If your personal information or data is shared with any partner organisation, it will always be shared anonymously or in an aggregated form to preserve individual privacy.

4.4 Personal information will be available for viewing to other Members through the Members page and TJBCM accepts no responsibility for how other users use this information.

5. Storage of Information

5.1 All information is stored on secure servers and only authorised personnel can access this data.

6. Legal Basis for Processing Your Information

6.1 Our legal basis for collecting and using the personal information described above will depend on the personal information concerned and the specific context in which we collect it. However, we will normally collect personal information from you only (i) where we have your consent to do so, (ii) where we need the personal information to perform a contract with you/on your behalf via a third party purchaser or (iii) where the processing is in our legitimate interests and not overridden by your rights.

7. Disclosure of Your Information

7.1 We may disclose your personal information to third parties when permitted by law including:

• with your consent;
• our provider of customer relationship management services (which allows us, for example, to send personalised email communications to you);
• if we are under a duty to disclose or share your information in order to comply with any legal obligation.
  • These organisations’ use of your personal data may be subject to their own privacy policies, which are available on their websites;

8. Data Retention

8.1. We retain personal information we collect from you where we have an ongoing legitimate need to do so (for example, to provide you with a service you have requested or to comply with accreditation by external bodies, i.e. The CPD Certification Service).

8.2. In line with the fifth data protection principle, when we have no ongoing legitimate need to process your personal information, we will either delete or anonymise it or, if this is not possible (for example, because your personal information has been stored in backup archives), then we will securely store your personal information and isolate it from any further processing until deletion is possible.

9. Data backup

9.1 Although we perform regular routine backups of data, you are solely responsible for all data that you transmit or that relates to any activity you have undertaken using the Website. You agree that we shall have no liability to you for any loss or corruption of any such data, and you hereby waive any right of action against us arising from any such loss or corruption of such data.

10. Your Rights

10.1 You can edit your personal details by contacting us directly at academy@tessajowellbcm.org. We maintain a procedure in order to help you confirm that your personal information remains correct and up-to-date or choose whether or not you wish to receive material from us or our partners.

10.2 In addition, you can object to processing of your personal information, ask us to restrict processing of your personal information or request portability of your personal information. Again, you can exercise these rights by contacting us using the contact details provided under in Section 13.1.

10.3 You may unsubscribe from certain email communications by emailing us at academy@tessajowellbcm.org in order to access, correct, delete or update your personal information on our systems. We will answer every email as promptly as possible.

10.4 Similarly, if we have collected and process your personal information on the basis of your consent, then you can withdraw your consent at any time. Withdrawing your consent will not affect the lawfulness of any processing we conducted prior to your withdrawal, nor will it affect processing of your personal information conducted in reliance on lawful processing grounds other than consent.

10.5 You have the right to complain to a data protection authority about our collection and use of your personal information.  For more information, please contact your local data protection authority.

10.6 TJBCM Website and Tessa Jowell Academy may contain links to and from the websites of third parties. If you follow a link to any of these websites, please note that these websites have their own privacy policies. Please check these policies before you submit any personal information to these websites.

10.7 You may obtain a copy of your personal data that we have collected. If you wish to access your personal data then you will need to make a request in writing to the address found under 14.1.

11. Cookies

11.1 TJBCM Website and Tessa Jowell Academy uses cookies. Cookies are small files stored on your computer’s hard drive which are used to collect your personal information. You may choose to refuse cookies but, if you do so, some of the functionality may no longer be available to you.

12. Research

12.1 Partner institutions that support TJBCM may carry out research on your use of the TJBCM website and Tessa Jowell Academy. Research will always be conducted in accordance with current best practice.

13. Updating this Privacy Policy

13.1 We may update or amend this Privacy Policy from time to time, to comply with law or to meet our changing business requirements. When we update our Privacy Notice, we will take appropriate measures to inform you, consistent with the significance of the changes we make.

14. Contacting us

14.1 If you have any questions, comments or complaints about this Tessa Jowell Brain Cancer Website Privacy Policy, please contact us using the details below:

Tessa Jowell Brain Cancer Mission

Unit 3, 42 Orchard Road

London, N14NG

United Kingdom

E-mail: academy@tessajowellbcm.org

14.2 If your complaint is not resolved, you have the right to contact the Information Commissioner’s Office.